chronicillness

I am absolutely disgusted that this administration is not defending the rights of patients living with pre-existing conditions. Without these protections made possible by the ACA, insurance companies could deny me coverage or hike up my premiums simply because I drew the unlucky straw and was diagnosed with chronic conditions. . . . My colleague @sakeichiban recorded a podcast on pre-existing condition protections as well as the controversial Right To Try legislation that just passed. I encourage you to listen in to get up to speed on some of the healthcare policy concerns currently at play. . . . Link in bio! . . . . #preexistingcondition #preexistingconditions #healthcare #healthcareadministration #ACA #healthcareforall #podcast #healthpodcast #righttotry #crohnswarrior #spoonie #arthritiswarrior #chronicillness #chroniccondition

I’m at the point in my health journey where it feels like every time i leave a doctor i only have more questions. I just saw a hematologist through USC who is an APS expert and he doesn’t think I have APS at all 🤷🏼‍♀️ 3 doctors have told me I do but he doesn’t believe i truly have it sooooooo now idk it’s just laughable at this point. Will i ever have things completely figured out? He said he tends to never get cases that aren’t just cut and dry patients and i clearly fall under that category. He wants to thoroughly review my medical history/blood tests (and new tests he ordered) then we will set up my follow up. This smiling picture was taken before the appointment because now I’m feeling a little defeated 😅. Life is frustrating sometimes. He said i could have pleurisy too because of the persistent chest pain I’ve had with inhalation. Who knows anymore 🤷🏼‍♀️ Never a dull moment when you have health issues. #Spoonie #ChronicIllness #InvisibleIllness #AutoImmune #Warrior #AntiPhospholipidSyndrome #UndifferentiatedConnectiveTissueDisease #GERD #POTS #OrthostaticHypotension #IST #MastCellActivationSyndrome #Sjorgens #Raynauds #Potsie #Dysautonomia #Sick #DisabilityAwareness #StayStrong #SpoonieWarrior #SpoonieCommunity #SpooniesUnite #ButYouDontLookSick #Awareness #RareDisease #Advocate #LifeWithChronicIllness

I'm on the third floor of my Speech and Hearing Sciences building eating orange slices and watching the world go by. This is my third day on 5mg Flexeril and my first day taking it in the morning. I had extra coffee and salt in case the Flexeril makes me sleepy. It's been about an hour since I took it and my legs hurt way less than usual. Like 7 down to a 2 or 3 on the pain scale. I could get used to this. _____________________ #fibromyalgia #myalgicencephalomyelitis #dysautonomia #pots #chronicillness #chronicpain #chronicfatigue #peripheralneuropathy #ibs #reynauds #wsuspokane #gradschool #flexeril #slpgradstudent #slp2be

And the day just gets better and better! Today I've got a notification to say there are now 200 people following my blog. That means 200 people have signed up to be emailed every time I put a post up which just AMAZES me! Chronic Illness has been a part of my life forever. I have always tried to use it in some way to do good. I believe I was given these for a reason - it's helped make me the person I am and I was made to help others with it. For a long while I wasn't sure how I would do it. And then I set up my blog following one of the hardest years of my life. Since then I've met some absolutely fantastic people and had the opportunity to work with some amazing people aswell. I've made a website that looks half decent for a girl with few computer skills. I've not been shy about showing the good, the bad and the ugly. I'm proud of what I face and overcome every day, so I have a decent quality of life. I've now gone back to my degree with a clear vision of what I want my future to be - I want to work with children and young people who are diagnosed with chronic illness and help support their mental health in particular. The next goal is 500 subscribers and to start getting in touch with people, charities and companies who can help me achieve my dream. Chronic illness is definitely not the end...it can be a new beginning, just make sure you remember you are the one steering the controls. #blog #health #healthblog #thespooniemummy #subscribers #prpud #dreambig #myfuture #goals #chronicillness #mentalhealth #ostomyblogger

Let’s talk coconut oil! Coconut 🥥 oil is a very unique oil compared to others. I get questions about it all the time, so I’m breaking down the chemistry of it plus ways to use it topically! Believe it or not, you can do more with coconut oil than just applying it to your face 🤗 I’m also addressing the health factor of coconut oil. Get the full link in my profile (chemistrycachet.com) 👩‍🔬👩‍🔬👩‍🔬 Do you use coconut oil? @vitacoco #chemist #healthtips • • • • • • • • • #skincaretips #cleanlifestyle #arthritis #chronicillness #chronicpainwarrior #rawarrior #rheumatoidarthritis #autoimmunedisease #bandofun #abmlifeiscolorful #myunicornlife #candyminimal #livethelittlethings #petitejoys #handsinframe #theeverygirl #proptoit #thatsdarling #visualcrush #peoplescreative #sobestfriendsforfrosting #simplejoys #livecolorfully #texasblogger #thehappynow #flashesofdelight

Team Spoons Full of Hope member Nell tells us why she Walks To End Lupus Now on this #WalkWednesday

There are few bigger shocks in life than being handed a diagnosis for an incurable chronic pain condition like fibromyalgia. But are there any silver linings? In this Living with Fibromyalgia series video, we discuss some life changes you might encounter after being newly diagnosed, as well as some strategies for coping with your new condition. · See the complete post with video at... https://fibropulse.com/newly-diagnosed-with-fibromyalgia/ · #fibromyalgia #fibro #fibrolife #chronicpain #chronicillness #chroniclife #spoonie #spoonies #spoonielife #spoonieproblems #spooniestrong #invisibledisability #invisibleillness #chronicillnessawareness

The ugly side effects of injectable medication that we hide from the world. When doctors prescribe medication that we need to inject at home and the bruising damages your skin. We shouldn’t hide it but we do because we don’t want to be judged by others.... so please people don’t judge someone Without knowing. #chronicillness #sideeffects #brusing #bruse #blackandblue #lupus #rhumatoidarthritis #meditation #documentary

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Hey there👋🏼! I've decided to take the steps and become a fitness coach! ___________________________ In 2014, I started to become ill, I was then diagnosed with a few chronic illnesses. I did not let this stop me though! I decided I was bigger than my chronic illness and began exercising. I have since, participated in FIVE 5k's, began the practice of yoga, started playing hockey, and just recently became a beachbody coach! 🎊🎊🎊🎊🎊🎊🎊🎊If you would like to join me on my journey and show your illness whose boss👊🏼my messages are ALWAYS open! #neverstopdreaming #21dayfix #beachbodycoach #dreambig #adventure #5k #together #diabetes #chronicillness

Today’s doctors appointment went well. We talked about me being anemic/ any growths that could be causing this bleeding. I got every blood they could think of drawn in the office to check all of that too (ahem chronic fatigue) I also got a referral to an allergist because I’ve finally broken down and accepted it. They will also be calling me to schedule a transvaginal ultrasound to check for any abnormalities internally. After that I get to have the gift of choosing a gynecologist (fear). The bleeding has exponentially increased and has shown ZERO signs of stopping so I’m fairly uncomfortable. Otherwise I put most of my updates on my story!

I’m teaching on this Sunday 24th June in West London💗✨💗 - Check out this flyer or below for more information about the class. Please share if you feel a calling🌸 - Healing, Processing and Expression through Yoga, for Women🧘‍♀️ My main focus is creating a safe space for women who feel the call to journey into healing, self care, self love and for those who struggle with mental health. This is a supportive and empowering environment. - The main focus is on compassion, being gentle and feeling your own process. Which leads to connecting with the body and breath, focusing on being calm, present and releasing anxiety. - Info also on the @lunarkind1 Website (Link In Bio) . . . . #yogauk #yogacommunity #lbloggersuk #yogalondon #yogaclassuk #thegirlgang #meditation #mindbodyspirit #mentalhealthawareness #anxietyhelp #hathayoga #sisterhood #wellbeing #yogauk #yinyoga #everybodyyoga #yogateacherlondon #womensyoga #londonyogi #asana #chronicillness #selflove #selfcare #britishasian #mindfulness #browngirlbloggers #yogaclass #chakras #majordepressivedisorder #cptsd

Falling asleep is never an issue. Staying asleep is the problem #chronicsleepdeprivation #chronicillness #sad #lonely #tired *sick #EDNOS #depression